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WEEKLY COMMENT
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Every Tuesday we send out the MedComms Networking email newsletter to subscribers. It includes brief commentary on what we're doing and planning, and highlights relevant news to encourage sharing of information, experiences and ideas and to stimulate discussion. The text and links included below, by definition, were accurate on the day of publication, but may then become outdated.
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MedComms Networking - 26 April 2022
Hi
It's almost like there's a "rare diseases" theme for the current #MedComms webinars. But, no, it's just about who volunteers and when they're available!
Last week's webinar reflected generally on specialist healthcare communications work with cell and gene therapies and rare diseases. Isabelle Blomfield, Rachael Ducker, Maggie Lai and Steve North from AMICULUM's specialist agencies, Seques and Comradis, shared lots of insights.
And next week, Alan Thomas joins me. Alan runs Ataxia and Me, a patient charity based in Wales with a global following that focuses on Ataxia, but also includes associated rare diseases and movement disorders. The increased appetite across the industry in recent years for engaging real life patients in communications activities has now coincided with the digital disruption in established working practices that has been accelerated by the COVID pandemic. On-line conferencing and social media platforms mean his mobility problems no longer need restrict Alan's advocacy activity in the same ways. But what happens in real life? Is the industry really walking the walk as well as talking the talk? Join us for wide-ranging conversation.
This week, it's MS Awareness week 2022 #MSWeek and in our #MedComms webinar we just happen to be talking with Jeff Bateman (Head of Strategic Communications, Congress) and Mar Tintore (Professor of Neurology and President-elect of ECTRIMS, the European Committee for Treatment and Research in Multiple Sclerosis) who will reflect on the new reality for medical societies and their congress activity. Everyone's welcome.
The last two ECTRIMS conferences were virtual. Way back in 2019, the conference was in person, in Sweden. That seems a lifetime ago. ECTRIMS 2022, in Amsterdam, 26-28 October, will be "hybrid" - so, onsite and online. What will that mean in practice?
How much of what's planned this year is led by demands from delegates? By the wishes of organisers? The funding models? A desire to experiment? Fear of getting it wrong?
It should be fascinating. Join us. Everyone's welcome.
Just how fast does it get complicated, though, if you try to keep everyone happy?
Zoom for me was game-changing, but as soon as I start planning something a little more complicated, I seem to need lots more people and kit to do anything. So, I was intrigued to see a demonstration of the Livve platform last Friday. "Studio-Grade Shows... created by you", they say. They're currently running demos every Friday, if you are interested. Any thoughts?
I do miss in-person events, though. I'm looking forward to meeting some of you at Alderley Park on 11 May for a valuable panel discussion, "Living our values in MedComms". And I'm looking forward to those serendipitous interactions over drinks, whilst walking in and out of the venue, whilst waiting for taxis and trains and more. That all seems impossible to replicate online. I know I'm now much more choosey about what I'll travel to join in with - what about you? Do choose this one if you can. The more the merrier!
There's lots more happening - online and onsite.
Cheers
Peter Llewellyn
Managing Director, NetworkPharma Ltd
Follow me on Twitter @NetworkPharma
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